Family Updates

Nov 18, 20216 min read

Harper's Diagnosis and ICD Surgery

It’s been another exhausting and emotional time for us lately (well all this year actually), this time with our little superstar Harper...

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Sep 25, 20202 min read

Donations! Thank YOU!

We are extremely proud to share that we have donated a grand total of £2,320 to charity thanks to all of our generous supporters!...

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Jun 8, 20202 min read

Let's talk Harper

Two beautiful identical twin girls, one has Brugada and the other...well at this point we just don't know if she has it or not. Brugada...

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May 29, 20201 min read

Change of plans to our Charity Walk

Charity walk this weekend 11th July

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Feb 17, 20201 min read

Exciting exposure for Brugada

We're working together with Arrhythmia Alliance Charity to publish Darcie's story through their media channels...more to come once...

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Feb 16, 20201 min read

Family Fundraiser

Weʼre raising £2,500 to Raise money for an Automated External Defibrillator (AED) for our family & Arrhythmia Alliance Charity via our...

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Jan 1, 20204 min read

Brugada Syndrome...never heard of it!

And you'll soon find out that unless you meet a Cardiologist or have been diagnosed with Brugada or have a family member with it, no one...

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